I am heading out of town this weekend to see some of my college friends and go to a football game. Looking forward to the weekend away full of laughing, reminiscing and catching up.
But before I left, I wanted to get some feedback from my readers out there– I know there is a variety of people who read this blog, some have MS, some have been affected by a family member with MS, or some find they can relate to the stories I share. I wanted to see if there were any topics, issues, ideas you wanted me to expand more on, talk about more, etc. Please leave me a comment and let me know.
Thank you for continuing to read. It means so much to me. Have a a great weekend!
Great idea! One of the things I would suggest, as a public service message, is MS Support. When first diagnosed, I was a bit, (ahem, maybe more than a bit) obsessed with learning as much as I could about MS. I read everything and traipsed all over the web looking for resources. A true in-person support group wasn’t for me but I found a wonderful online community in MSWorld and participated in the forums there for a while–it was just what I needed. It would be nice to know what other non-traditional support networks have come about in the past 10 years, for both those with MS and for those with loved-ones with MS. Recently, I have learned a coworker is in the process of being diagnosed so I guess I am also trying to find resources for him to build his own personal support system.
I had not heard of MSWorld so thank you for pointing it out. I am going to look into the forums there to see what may be available as additional areas of support. I agree that I think knowing as much as you can is the best way to educate yourself about the disease. We have a hard time with doing that with my Mom but I figure the more I know the more I can help her. Thank you!