The Disappearing Act

The number one thing people like to say to my family is “let me know if you need anything.”  I realize they probably have good intentions but I have also realized this is their key phrase for several reasons:

  • It gets it mentally “off their plate.” They can think of my family and then think to themselves that they need not worry because they said “let me know if you need anything.”
  • They care but do not know what else to say.
  • They care but do not know what to really offer to do.

Here’s the issue with this when your Mom has something like MS- MS is not temporary. It’s not like Mom is in the hospital for a little period of time and we need someone to feed the dogs. It’s not like Mom is going to get well and needing your help is temporary. MS is going to continue but I have noticed that the offers of “let me know if you need anything” tend to discontinue after awhile. Not that people do not offer, instead they disappear.

I have noticed recently that a lot of our family friends don’t call as much. Couples my parents used to get together with do not get together with Mom or Dad or call to check in on them. Instead they have just disappeared. Mom gets down thinking she doesn’t have any friends. The primary people in her life are Dad and her two care takers. She text messages her close group of friends from college on a daily basis on a big group text. She keeps up with people on Facebook. She essentially watches life go by as she sits still at home.

It is sad and something that is starting to bother me. I told Sister K from now on when people ask if they can do anything or ask how Mom is doing, instead of giving them an answer about her physical health, I am simply going to respond “She’s really lonely. It would be great if you would give her a call or stop by to say hi.”

I am curious what people’s responses would be in that scenario. Would they act? Would they call? Would they follow through? I think the sad part is I honestly do not know. People get busy. They forget. They don’t understand what our family is going through. They don’t understand what it is like to have a Mom in this situation.

What lesson have I learned in all of this? I have learned do not ask if people need anything. Instead insert yourself into their life and do something. Do not wait to be called. Take the initiative and make the call.

Choose not to disappear. Appear. Appear again. And appear again. I promise I am never going to forget who showed up during this time. I am also never going to forget those who disappeared.

What are your thoughts on the phrase “let me know if you need anything?” Has your family ever gone through something tough and people stepped up or people disappeared? How do you manage emotions of being disappointed by people in your life? 

Be Aggressive. Be Be Aggressive.

In a perfect world dealing with Mom’s MS would only be stressful because of MS. It would not be more stressful because of others. People around us would cooperate and be helpful everywhere we went, they wouldn’t make comments, give us looks or stand in our way. I learned a brutal reality while we were on vacation last week that it is very much not the case.

In the real world, people stepped in front of Mom as she tried to roll around in her scooter. They would sit and stare at us when we are trying to help move Mom. They slam doors on us. They say rude comments when we are trying to use the scooter through the lobby. People are rude.

The most shocking moment of the trip is when we boarded the airplane second in line behind someone who was so not handicapped the thought of it still makes my blood pressure rage. We flew Southwest Airlines and they select which wheelchair is going to board first based on what method I do not understand. Because if it was by need, we would have gone first. We informed the gate attendant that Mom was going to need a physical lift, aisle chair and assistance to get on the plane. The gate attendant took another woman who had her own wheelchair and her husband who followed behind and they rolled on to the plane and took the number one spot. Mom on the other hand needed to be the first on the plane because she had to use an aisle chair to get to the first row. These people just sat and stared while mom was wheeled in her aisle chair and had to sit in the second row because they had taken the first row on the left, the only side she can transfer to easily.

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I realize there are a lot of reasons I may not be able to see why someone may need a wheelchair. Allow me to explain- How do I know this woman didn’t need this extra assistance and position in line? Because my family was the last off the plane. And after everyone was off and we were waiting for assistance for Mom the flight attendant said, someone left their wheelchair. Someone used it to get on board and then left it. She was trying to figure out who it was and I knew exactly who it was because I had watched this same couple walk off the plane first without their wheelchair. I was livid and kept my mouth shut in offering up the information I had about the owner of the wheelchair. You needed to be the first on the plane in your own wheelchair yet you didn’t need it when you got off? Is this a joke?

The flight attendant also said it is interesting that they usually board about 9 people with wheelchairs and miraculously cure about 4 of them in the air and they walk off the plane. People who just want to be on the airplane first. Can you believe this? I would never even imagine doing something like this but it is happening all over the place on Southwest Airlines. I personally think it was to do with their boarding policy being first come first serve. I need to watch more closely the next time I fly a different airline to see if the same issue exists. As this was my first time flying with Mom, it was the first time I actively noticed this.

So where does Be Aggressive come in? Well in a few distinct instances:

  • The security guard wanted mom to take off her shoes to be wheeled through security. This is actually a big ordeal and painful for Mom- I should’ve said no.
  • We should’ve demanded Mom be the first on board. I guess the reason we couldn’t is because we were focused on about 500 other things at that moment and you are at the attendant’s mercy, Mom has MS- when you are actually handicapped nothing is easy and people should be respectful of that piece of your life. 
  • A man yelled at Mom to slow down in her scooter through the lobby when he was the one who stepped in front of her. I should’ve turned around and yelled back. 
  • On the return trip I was trying to get Mom’s medicine out of her overhead bag while people were boarding the plane, not blocking the aisle at all, and instead of giving me a minute the flight attendant yelled at me that there was no baggage space above. Get a grip jerk! I snapped back I am not trying to put a bag up I am trying to get my Mom’s medicine down and sat down- without the medicine.
  • The police officer yelled at me when I drove the car up when we had arrived home telling me I couldn’t leave the car parked there. I said I had two wheelchairs inside and he continued to be condescending, yelling at me to move it. I yelled (because we were communicating in a loud environment not even near each other) I’ve got a Mom with MS and an 86 year old Grandfather. They can’t physically get out here. So he backed off and said I could have a few minutes.

But still. It shouldn’t get to that. It is just the initial gut reaction society has that you are in the wrong, you aren’t telling the truth, you are taking advantage- guess what society, you could try to help us out just a little bit! Sometimes we are at our wits end with everything we are juggling and all we need is someone to be nice to us and our family. Someone to hold a door open. Someone to help me find room for my overhead bag. Someone to make a funny comment to Mom. Because those tiny things, they did happen during our trip and they may seem insignificant but they meant the world to me and made me feel like we were going to be okay. They made me feel like other people had our back.

I imagine it is because of people like I described above who are so clearly taking advantage of the systems in place for handicap people that those who truly need the assistance have to fight to have it. I say fight to have it because that is how I feel. Numerous times did Sister K and I have to get aggressive with our voices on the trip to get people to move, to get things done and to get some help. It is not in our nature to do that or to respond in that way. We were raised to be polite and not stir the waters until necessary. We are being forced to learn in a strange way how to stir the waters and how to quite honestly, BE AGGRESSIVE, BE-BE-AGGRESSIVE.

Lesson Learned: Look out for others when you are traveling or in daily life. Get out of your own bubble and recognize when someone may need some extra assistance or just an extra smile. It can be more powerful than you realize. And if you are on the receiving end of rude people or poor service with a loved one, get into the habit of fighting back for your loved one. Don’t think about it or think about if you are being rude. Just do it.

I am curious if other people have had similar issues with traveling, people taking advantage of handicap situations or people being rude? Or maybe you remember a distinct moment when all you needed was one person to show you some kindness in a very stressful situation and they did, reminding you that people are good? 

Checklist Stress

My family just returned from a week long vacation in Las Vegas. Dad, Mom, Sister K, Grandpa and I all went and flew together from home. Husband wasn’t able to make it because of work. This trip has given me so many thoughts, feelings and emotions I need to flush through. The biggest of all- the lack of control and anxiety that comes along with traveling with Mom who right now for all purposes is essentially handicapped. Mom cannot physically stand or walk therefore she needed wheelchair assistance from the beginning to end.

Monday came, our official travel day, and I woke up early and just felt stressed. On top of everything else it was also pouring rain which also added another item to the list of things I cannot control- weather.  I felt like the entire day was a long check list and I would finally be able to let my guard down once we were physically in our hotel rooms and I knew we had made it.

What was on the checklist?

  1. Get Mom in the car to the airport.
  2. Get Mom out of the car at the airport and into a wheelchair. Get Papa a wheelchair too.
  3. Get luggage checked and boarding passes printed.
  4. Get Mom and Papa through security.
  5. Get to the gate early enough for pre-board.
  6. Get Mom on to the plane with special assistance of the aisle chair on the plane.
  7. Get Mom off the plane in Las Vegas.
  8. Get Mom back into her wheelchair.
  9. Get our bags.
  10. Get a car to drive us to the hotel.
  11. Transfer Mom from wheelchair to car.
  12. Transfer Mom back from car to wheelchair at the hotel.
  13. Check into hotel and hope we were able to get adjoining rooms.
  14. Arrive in hotel room and figure out how to get Mom into a different bed.
  15. Get food for everyone.

And that concluded Travel Day.

I would say this was the most stressful day of the entire trip. Even traveling home was not nearly as stressful. But I felt like the entire day I had a check list in my head and I was checking items off as we went along. Monday evening Dad, Sister K and I all went downstairs to get food for everyone and we all had a cocktail while we waited for our food. I felt like in that moment of cheers it was to think we did it! We made it.

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I keep running everything through my mind wondering how I could’ve had less anxiety or less nerves about the situation. Sister K seemed fine. Dad seemed a little stressed but is much more deal with the challenge as it comes. Do I think about it wrong? Do I need to stop thinking about the overview and go one step at a time? Can a person change how they deal with things like this? I know Sister K didn’t have a running to do list in her head on travel day. I don’t know.

We did make it though and it all worked out great. But now in hindsight there were important lessons I want to remember for the future.

Lesson #1: Try not to let the overview of the entire travel experience overload your emotions. In my case there were honestly moments in the morning before we left for the airport that I felt so stressed and overwhelmed that I secretly felt borderline sick. That’s not good and I need to find a way to process that better.

Important to Remember: It always somehow all works out. It is stressful in the moment but in the end it figures itself out. You can’t predict every bad scenario and the outcome. You also can’t have a back up plan for every plan.

I learned a lot on this trip and plan to spend the next few weeks processing all these lessons…but overall:

  • Did my family bite off more than we could chew taking Mom with MS and Papa who is 86 to Las Vegas? Maybe.
  • But was it worth it because of the memories we have given them and now have? Yes.
  • Will we do it again? I don’t know.
  • Am I glad we did it this time even with the additional stress? Absolutely. 

How do you handle stress of the unknown in these kinds of situations? Do you ever find the task at hand daunting because of all the to do list items it involves? Do you have experience traveling with someone handicapped and managing the additional items involved there? 

Same Ol’ Same Ol’

It’s amazing how the mind works. I am beginning to think that when I look back on how I am mentally able to process everything going on with Mom and its impact on my family, I will someday wonder how I did it. I will someday be on the other side of it and look back and think how did I function through all of that? I most likely don’t give my mind enough credit, instead questioning its reactions to everything.

Mom is going home from the rehab facility tomorrow. Sister K and I talked to her about it Wednesday night in a conversation that went in circles. Circles in the fact that we talked about the same thing several times and we both weren’t sure where it was going. We got disconnected in the middle from Mom, Sister K called me back before calling Mom and all we could do was laugh and say “whatttt is going on right now???” Moments like that I can honestly say with every ounce of my being I do not know what I would do without my sister.

I talked to Dad about it a little yesterday and some more today. He told me he had gotten the file from the place and it said Mom had been “self limiting.” An interesting choice of words…taken to mean she isn’t pushing herself like she should. Other charts revealed she had not improved very much. Basically she will be returning home and after one month, we are exactly where we were a month ago. My exact thoughts about all of this initially have been realized. So what next?

Dad said he is bringing in a new company and people to stay with Mom during the day/night. Bringing in a physical therapist to work with her 1 hour a day. He’s going to explain she has to get improve because this is the last option we have…last option before what? I thought rehab was the last option? Now this is the last option?

I realized something on the phone. I could’ve said exactly all of that to Dad on the phone but I didn’t. My conversations on this topic are having to shift a little with Dad because I am having to listen but stay quiet and supportive…even though deep down I really feel very differently and have my own very different thoughts. The words used have become something of a “same ol same ol” in our house. I feel very same ol same ol right now about everything. People ask how Mom is doing? How was rehab? Same ol same ol. This is a big reason I think why I kept this so quiet from everyone…because I wondered deep down if this would happen. I’d rather have never said anything then have to say we are back to same ol same ol.

But what happens when you get tired of this never ending circle we seem to be in called same ol same ol? Is it bad to wonder how much longer your family will be stuck in this never ending space of same ol same ol? Because I wonder. And as someone who hates change, I am beginning to wonder if we are ever going to see any…and dare I say I am actually beginning to pray for change. Because the lack of anything is beginning to wear all of us out. I see Dad trying to keep his spirits up. Taking any hope he gets from anyone as the end all, be all word. I just don’t react the same. Instead when he talks to me and tells me these plans for Mom, I just think same ol same ol. Maybe its bad or maybe it is how my mind is coping with it. The brain is an interesting place and I can’t imagine it is easy to process all of this…maybe instead it has decided this portion of my life is going to be stuck in same ol same ol, so I can remain the support system my family needs without really acknowledging everything going on…I have to trust my mind because it may have decided that if it stops to acknowledge everything going on, it will be overwhelming on levels even it cannot handle.

So how am I today? Same ol same ol. How are you?

 

A Monday Smile

We got Mom an iPhone for Christmas and it has been a hilarious undertaking trying to explain how to use it…especially via long distance. She’s got the phone and texting parts down but when it comes to fancier things, Sister K and I must take a “patience pill” before we start explaining.

The best thing about Mom getting an iPhone has been the addition of group text messages into our life. Sister K and I have had to learn to slow down our thoughts because Mom can’t keep up…slow down. Seems to be a growing theme with all things MS related. Another post for another day.

Last night, somehow, Mom managed to take a “selfie video” (as she called it) of herself watching the Oscars and of the decorations in her room at her rehab place courtesy of Sister K. It was a silly video but you could tell she was really trying to capture everything in and was so proud of it. She also said if we share the video we are dead…so unfortunately I won’t be sharing.

Sister K was the one who guided her through how to send it to us via text. Sister K seems to be better at explaining these technology things to Mom. I think I get overwhelmed and don’t even know where to begin with teaching her how to do it…it is probably because Sister K is a teacher and naturally thinks in teaching ways. I think big picture, I am overwhelmed and Sister K just dives in…although there are times when we flip roles and it is the reverse of this between us.

Regardless, it was a cute video and it was sweet to see Mom being so proud of what may seem like a little accomplishment to many. It is also another example of the power of technology in keeping people connected…I think people forget that many of these connections could be happening in hospital rooms/rehab rooms with people away from family all over the country. The video also made me smile when I watched it last night…and it just made me sit back and smile as I just watched it again…not for the content but for a Monday smile.

I hope something crosses your path today no matter how simple or silly it may seem that makes you smile too.

 

A Lot To Talk About

I have to admit that I think I have been avoiding this blog. Not because I don’t have a lot to talk about but because I have a lot to talk about and in talking about it, it all becomes more real.

The past few months have been tough with Mom. Basically she is pretty much bedridden or in a wheelchair. She cannot stand on her own or walk. I am sure you can imagine the challenge this has created within my family..more specifically Dad. We have had two women caring for Mom for the past 6 months, one during the day and one at night. Dad has been doing it on his own on the weekends.

One weekend in January I went home and took care of Mom on my own. Dad was on a work trip and Sister K and I wanted him to stay an extra day so he could just have some time to himself. In order to do this, one of us needed to go home and be with Mom. It worked out better for my schedule so I did. I was happy to do it but it was mentally and physically exhausting at the same time. I just kept thinking I can’t believe Dad does this on his own every weekend on top of managing life- running errands, grocery shopping and taking care of everything else. I had taken home my computer, books and movies thinking we’d have lots of down time but that was not the case. I am not sure how but it just was not the case.

To make a long update short, at the recommendation of Mom’s physical therapist and Mom’s doctor, Mom has entered a rehab facility for intense physical therapy for a few weeks. She has been there about two weeks and going on her third week. It was a battle to get her in there in the first place because of insurance since this is different from last time when she went from the hospital to rehab.

How is she doing? Has there been improvement? Sorta. But she isn’t standing or walking yet and a big part of me wonders if she will ever stand or walk again. I am having some serious internal struggling with this since Dad is so hopeful that she will and I don’t want to see like the family pessimist. At the same time, I have read a lot on MS and I just don’t know. No one knows I guess.

So I guess you could say I am struggling right now. MS continues to be something our family is dealing with and it continues to be something that will never give us a break. Even Mom being in rehab hasn’t been a “break” for Dad because he is having to stay on top of her care, on top of the doctors, physical therapists and go to visit her when he isn’t at work. It has actually added more to the work load than less like he originally thought.

I will continue to write more on all of these topics. I need to. I think it is helpful on a lot of levels and I am going to force myself to do it. The bottom line is writing about it is like my own therapy and writing about it amidst this community has become a way and a place for me to know that my family is not alone in our struggles. Thanks for continuing to read as I come and go from time to time. I am beginning to think it is reflective of how I am managing everything, how much I want to talk about it and deal with it and how much I prefer to remain quiet. But there is a lot to talk about and I am going to continue to do it.

We Never Stop Learning From Our Mom

Going home is always interesting right now. Always. I feel like new challenges emerge, new themes within myself and new themes within our family. Everytime. As I am managing Mom’s MS I am also managing myself. I am learning a lot about myself in the process- learning that there are some things I have to improve upon to make me a better daughter but in another way to make me a better person. It is almost as if Mom is still teaching me even though she thinks she isn’t. She is still molding me as Mom even when she doesn’t realize it.

Slowing down: It is no lie that when Sister K and I go home we are forced (not necessarily by choice) to slow down. Our family moves slow, we can’t go anywhere quickly, we run late to everything and we don’t do nearly as many activities as we once did on the weekends. There is a lot of lounging around. A lot of just being.

Slow Down.

Being Present: At home it seems we are constantly multitasking. Constantly. I feel this a lot especially internally. I am looking at what we need to get done during the day. Looking at the point we are at currently. Trying to rush to get errands run, feeling stressed and uneasy about things that need to get done…and in the process my body is present but my mind is not. When every time and I do mean every time we somehow get it all done. And if we don’t get it all done we manage to figure out an alternative. It is like I can’t just have faith that it will all work out, knowing in the past that it will all work out and just chill out. Maybe it is a control thing or the inner planner in me…I am not sure…but I do know I become so fixated on the tasks we need to achieve instead of being present for the moment happening right now. A moment I probably won’t get back.

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Enjoying Moments: I have got to find a way to calm the voices inside of my mind, calm the negative thoughts, calm the worries and just focus on and enjoy my moments at home. I am not saying everything is perfect and that ever moment is enjoyable. We deal with a lot when we are home and do a lot to help Mom in order to give Dad a break. We are not perfect. There are moments where it is too much for Sister K and I step in or vice versa…or moments we notice Dad struggling and we step in. We read each other very well and I do consider that a major blessing. But at the end of the day, these moments regardless of how mundane or boring they may seem to other people, they are our family moments right now. This is the time we have been given to spend with Mom and I need to be present for them and enjoy them. I need to put aside my phone, put my thoughts or worries aside knowing they will all get done and just be present.

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It is amazing to me but Mom is still teaching me through this, she just doesn’t realize it. She is teaching me to be still and to be present to better enjoy moments like the above- an afternoon movie with Mom, Sister K and our dogs. Mom’s MS is full of tough times, special moments and lessons learned. The journey I am taking as being a part of this is molding and shaping me in new ways everyday…I just need to take a step back when I get overwhelmed and remember that.

Do you have trouble with being still and present in life? How do you allow yourself to quiet your mind and enjoy moments? Do you think sometimes the smallest and simplest moments are also the most special? 

A Different Kind of New Year’s

New Year’s Day is usually synonymous with optimism for the new year, resolutions, relaxing, organizing, and enjoying a well deserved day off. This was my plan heading into 2014 but I soon realized that was not how I was going to spend the first day of 2014.

Husband and I traveled home to be with my parents for New Year’s Eve because we had a wedding for a family friend to attend. We were running late as usual because it takes Mom a long time to get ready. It then takes a long time to get in the car. And as I watch Dad do this I fear every time he is going to hurt himself. We missed the ceremony but showed up in time for the reception. I watched Mom as she repeated herself several times about a group picture she wanted to take. Not repeating to make sure it got done but repeating to because she thought it was the first time she said it. I started to cringe a little bit. We then had to maneuver her around across cobblestone rocks that hurt her legs. We then had to find a good spot inside for her to sit. And the list went on and on. I sat there at the table just kind of tired and mentally out of it. Thinking these used to be fun and care free events for my family and now they just aren’t.

But we rang in the New Year at home with Mom and Dad. We had champagne and chips and queso. Husband and I opened belated Christmas gifts. It was a nice ending to the year.

New Year’s Day was frustrating though. It was frustrating because Husband and I had planned to get up and leave early. I quickly realized after waking up that wasn’t going to happen. It wasn’t going to happen because Mom had invited Papa over for a big spaghetti lunch. She kept saying Dad could take care of getting everything ready but there was no way Dad could take care of everything because he was busy taking care of Mom. A whole separate issue going on right now too. I realized I had to stay. I had to stay to get lunch fixed. Mom had envisioned this lunch in her head and even though I felt it was unrealistic, it was too late and I needed to execute it. So I did. Husband and I stayed around and didn’t leave to drive back to our home until around 4 getting home around 7pm.

I felt happy I could step in for my parents and help them out. I also felt frustrated I had to step in to help them out. I also just felt defeated. I feel defeated by MS right now. I feel angry it is in our lives. I feel helpless about what to do. I feel sad for Dad and everything he is going through as Mom’s caregiver. I feel clueless about where it is going. I feel hopeless and then I feel guilty for feeling hopeless. I feel selfish for saying I miss Mom and I miss the way things used to be. I am feeling a lot right now. I don’t understand what 2014 holds. I know where we were a year ago and I know where we are today. I don’t know where we will be tomorrow. I am trying to take one day at a time but it’s hard. It’s hard when you can’t see a light at the end of the tunnel. You just see another day in the tunnel. And I am worried that 2014 is going to be a year of tunnel-filled days.

Wishing you health and happiness in the New Year! Thanks for sticking with me through 2013! 

I Can’t Fix This. (and I am slowly becoming okay with that)

There are two sides to MS in my life- there is what Mom is going through and there is what Dad is going through. I see both sides. Or I should say I hear both sides. More specifically I heard both sides on the phone yesterday.

Mom is in pain. A lot of pain. She is also pretty much bedridden right now. It’s the first time I have said it that way but that is what it is- Mom is pretty much confined to her bed. Her physical therapist has recommended she possibly go back to the rehab facility she was in post-hospital in May 2012. She thinks it will do more for Mom than she can do with just a couple hour visits a couple times a week. Mom feels helpless. Mom feels bad for the burden she is placing on Dad. She feels sad that this is happening. And I get it.

Dad is overwhelmed. Rightfully so. He is going nonstop these days. He does have someone in our house both during the day and at night to help Mom. But on the weekends he is on his own. He’s also just mentally going nonstop. Running his company. Running our house. Also managing Papa’s life. It’s a lot. I have known this for awhile and unfortunately instead of getting better with the addition of help in our house it kind of seems to just be a small band-aid.

But for the first time I really didn’t get overwhelmed/depressed/stressed by this. I listened to Mom and talked to her. I listened to Dad and talked to him. Then I got off the phone and just sort of let it all just settle into the back of my mind. I am not avoiding the issues but I am also not focusing on them. I am beginning to believe we are reaching a cross roads with all of this. A cross roads which I am not sure what the result is going to be because for once I am finally admitting I not only don’t have control but I also can’t fix it. The two biggest things I struggle with I am slowly realizing to let go of them. Call it growth. Call it faith. Whatever it is, I need to trust it to guide my family and me through the challenges we continue to face.

Thanks to this place for listening. And thank you for being a place for me to share my struggles. I think I have experienced this little thing called growth thanks to this other little thing called my MSRecess.

Have you ever had a challenge or struggle that you finally just let go of? Have you ever experienced issues with trying to control or fix things in life and finally realized you just can’t? I’m not an expert yet but I hope I am slowly getting there. I’d love to hear your tips when you feel challenged by life.

10.25.13

This is a post I wanted to do last Friday but you know, life happened, work happened and here I am doing it 10.29.13 instead:

Mom’s birthday was Friday. It had been a long week and I bribed myself to get out of bed with Starbucks. Desperate times call for desperate measures.

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But I called Mom in the morning on my way to Starbucks to tell her happy birthday. She picked up the phone and I shouted HAPPY BIRTHDAY. She thanked me, we small talked for a minute but I could tell something was off. Something was wrong. And then she said “I’ve had better”…and then started opening up to me more and started crying. The nurse that takes care of her overnight had found some bumps on her arm that she thought were actually a rash that was contagious. Mom had some flaky skin on her legs as well and they weren’t sure if they were related. Mom was frustrated because she is wearing compression stockings all the time and figured it would probably be the reason for the skin irritation, not a rash. It was all around awful. Dad got on the phone briefly to say Mom’s day nurse was taking her to the doctor at 11 that morning. Mom also had plans to go out to a birthday dinner with friends and that was in danger of being canceled because of this rash. It was awful. Mom was upset. And I felt so overwhelmed with sadness and defeat that there I stood in a line for Starbucks on a Friday morning with my eyes filling with tears. This was unfair. It was amazing to me that it was a Friday morning, a happy time because the weekend is about to start, I was in Starbucks waiting in line for my favorite coffee and I was overwhelmed with sadness that was slowly turning to anger.

I got in the car to drive my very short drive to work and I just yelled WHY WHY WHY WHY WHY WHY WHY WHY. LEAVE MY MOM ALONE. CAN’T YOU LEAVE MY MOM ALONE.

That was the gist of my conversation with myself in the car. Then I got to go into work.

Fast forward to 11am, I got a text from mom that said the words “just dry skin.” As it turns out the doctor told Mom there was no rash and it was just dry skin. As I chatted with Mom over my lunch hour at 12 I told her, I think we need to have a birthday redo. I say we ignore this morning, and officially restart your birthday at 12:00 today. She thought that was funny and we went on to have a really nice conversation. Mom was alert, we were communicating well with each other and it was just an overall good conversation. It made me thankful and amazed at how the day turned around. It was something I wanted to remember.

But I guess in a lot of ways that is life and that is what makes our days- the days that I am supposed to be taking one day at a time. On this particular day I felt every emotion possible and I felt them all before about noon. What did I learn? Sometimes you need to sit in the car and scream. Sometimes when you stand in line at Starbucks you have more on your mind than your coffee order so be kind to the people around you because you never know what’s on their mind as they wait to make their coffee order. Sometimes you need to press restart on your day and just move forward….whether it is your birthday or just another regular day.

Happy Birthday Mom! I am glad you had a great day filled with a fun dinner with friends and topped off with three free desserts from your favorite restaurant!

Have you ever had to press restart on a day? Have you ever screamed in the car? Do you ever bribe yourself to get out of bed and start your day with a Starbucks drink?