New Year’s Day is usually synonymous with optimism for the new year, resolutions, relaxing, organizing, and enjoying a well deserved day off. This was my plan heading into 2014 but I soon realized that was not how I was going to spend the first day of 2014.
Husband and I traveled home to be with my parents for New Year’s Eve because we had a wedding for a family friend to attend. We were running late as usual because it takes Mom a long time to get ready. It then takes a long time to get in the car. And as I watch Dad do this I fear every time he is going to hurt himself. We missed the ceremony but showed up in time for the reception. I watched Mom as she repeated herself several times about a group picture she wanted to take. Not repeating to make sure it got done but repeating to because she thought it was the first time she said it. I started to cringe a little bit. We then had to maneuver her around across cobblestone rocks that hurt her legs. We then had to find a good spot inside for her to sit. And the list went on and on. I sat there at the table just kind of tired and mentally out of it. Thinking these used to be fun and care free events for my family and now they just aren’t.
But we rang in the New Year at home with Mom and Dad. We had champagne and chips and queso. Husband and I opened belated Christmas gifts. It was a nice ending to the year.
New Year’s Day was frustrating though. It was frustrating because Husband and I had planned to get up and leave early. I quickly realized after waking up that wasn’t going to happen. It wasn’t going to happen because Mom had invited Papa over for a big spaghetti lunch. She kept saying Dad could take care of getting everything ready but there was no way Dad could take care of everything because he was busy taking care of Mom. A whole separate issue going on right now too. I realized I had to stay. I had to stay to get lunch fixed. Mom had envisioned this lunch in her head and even though I felt it was unrealistic, it was too late and I needed to execute it. So I did. Husband and I stayed around and didn’t leave to drive back to our home until around 4 getting home around 7pm.
I felt happy I could step in for my parents and help them out. I also felt frustrated I had to step in to help them out. I also just felt defeated. I feel defeated by MS right now. I feel angry it is in our lives. I feel helpless about what to do. I feel sad for Dad and everything he is going through as Mom’s caregiver. I feel clueless about where it is going. I feel hopeless and then I feel guilty for feeling hopeless. I feel selfish for saying I miss Mom and I miss the way things used to be. I am feeling a lot right now. I don’t understand what 2014 holds. I know where we were a year ago and I know where we are today. I don’t know where we will be tomorrow. I am trying to take one day at a time but it’s hard. It’s hard when you can’t see a light at the end of the tunnel. You just see another day in the tunnel. And I am worried that 2014 is going to be a year of tunnel-filled days.
Wishing you health and happiness in the New Year! Thanks for sticking with me through 2013!
What you are feeling is normal. Your mother is not the only one affected by MS, you all are. I would like to say it gets easier but it doesn’t. This is why so many partners walk away. Live for the good moments, cherish the good moments. Because one day hard decisions will have to be made.. But know this: you are not alone! Vent when you need to, we understand. . . we really do.