The Irky Reality of Friends

As I get older I am realizing how important certain friendships are in my life. At the same time I am also becoming more disappointed by certain friendships in my life. Growing up and friendships are a double edged sword.

I am not a person who has a million friends. I have a few close friends. But I would do anything for them. My friends are like my family. I know I can call on them when I need something and expect them to call on me when they need something. This is both good and bad. These are my friendship expectations. I have a problem with expectations as I admitted yesterday. When these expectations aren’t met I not only become upset but I feel deeply hurt. It takes me awhile to recover from it. To put it behind me. I am not saying this is a healthy approach. I am trying to actually work on this approach. Trying to allow myself to “let things go” easier than I do. But it’s hard. The “letting go”- that is a post for another day.

The point though is that I have been very private lately about Mom’s health. Especially with everything that began happening last week. At first I really didn’t want to tell anyone. I think in telling people other than Sister K, Dad, and Husband it became more real. I had to explain what was going on at a time when we didn’t know what was going on. I had to verbalize it. Then came Wednesday and I thought, you know I should probably update my friends on this. If they were in my shoes I would want to know if something had happened to one of their Moms. I’ll just send a few emails and then won’t think much of it. What I didn’t expect though is how good it would feel to read their responses. It was like a big email hug from friends who live anywhere from 2 hours away to hundreds of miles away. I read these emails and I let myself feel. It felt good to feel this love.

I am not a person who the second Mom went into the hospital I was updating my facebook status. That is not how I wanted to handle this. I wanted to handle it in my own way. I am dealing with something new to me and wanted to deal with it privately without a lot of outside attention. But I am also realizing it is nice to have support from other people outside of my family.

There is also a double edge to this. There are also the people who I thought would be there and be supportive that don’t step up. That part hurts. I think my mind tends to focus more on the half empty part. But the point is I need to find a way to block those thoughts out. I don’t need to think about them. I need to remember that. I need to stop the negative thoughts. I have so much going on in my life that if you are going to bring negativity to my mind I will block you out. 

Simply stated, I don’t have time for negative. In reality no one should put up with negative thoughts or negative people in their life. It’s not worth it. But it’s especially not worth it in a time of crisis. It is in a time of crisis when you realize who those true friends really are. The ones who make you laugh, the ones who pray for you, the ones who say let me know what I can do, the ones who you can ask to send your Mom cards. Those are my friends. I need to focus more on these people. In the end these friends are the only ones that matter. It’s these friends who I can lean on and these friends who are going to rally behind me, support me, and get me through this.

Have you ever faced a crisis and realized the love and support you do have from your friends? Have you ever felt disappointed by a friend? Do you ever struggle with keeping the negative thoughts out?

A Spring Statement Piece

The good news, Mom does not have a stress fracture in her hip.  The bad news, the doctor doesn’t know what is causing the pain.  She was given a shot in her muscle which seemed to calm things down but she woke up this morning again in pain.  If the pain does not improve today she is going to go back and receive a lumbar scan to see if this is a nerve. Mom and Dad sounded upbeat though last night. That was a relief to hear. Today though a little less upbeat, a little more unsure. 

To perk up Mom’s spirits, Sister K and I spent the morning like we always do sending her emails.  We forwarded promos we received from stores, comments on The Bachelorette premiere last night, or silly stories we read online. Email is a great way for us to communicate during the day because Mom has an iPad so she is able to be on the computer without having to maneuver and actually sit in our computer room.  She can sit at the kitchen table or even be laying in bed checking emails.   

I knew Mom must have been feeling a little better today when all of a sudden I saw her name appear in my inbox.  Then it appeared again and again as she was replying to the emails sent several hours ago.  One of her responses in particular made me laugh.  Mom used to be an avid All My Children fan.  We laughed that Susan Lucci was her idol. Now that it has been canceled she has been branching out and watching the other new abc shows, The Chew and The Revolution.

So this afternoon she emailed us the following message based on what she had just seen on The Revolution:

the world is a stage,every day you are the actor…work it!
Big things for Spring . . 
Metallics, shine, lace, eyelets, mix patterns,
Colors- pastels and sorbet (this is a watered down pastel shade)
Splurge on the ONE piece that brings energy to you, like a statement necklace, or a bling headband added to a simple outfit
Wedges or espadrilles in bling color
Arm, ear or wrist candy in a neon color added to a simple outfit.(not huge pieces)

Yes. The email is all over the place and practically verbatim from the show but that is the art of Mom on an iPad.  The best part is Sister K and I can speak this fluently and understand everything she is saying. 

But when I asked what her statement piece for Spring would be she replied: “Pinky”

{I am not sure I have explained this yet but Mom has a pink walker.  We don’t call it a walker. I decided a long time ago I wasn’t going to refer to this thing as a walker and no one else would either. So we named it Pinky. And it is called Pinky by everyone, everywhere we go. This is a topic for another day though. Pinky deserves her own post.}

So what is the point of this email with fashion tips for Spring? To show that I am truly from a family of girls.  A family of fashion loving girls. And we have successfully found a way for Mom to continue to show this side of her amidst everything else. To the point where she now refers to her walker, “Pinky” as her statement piece for Spring. 

It makes you think about what the phrase “statement piece” should really mean.  In Mom’s email The Revolution said it is “one piece that brings energy to you.”  Typically you would think it is a necklace or bracelet, but could it be something more?  Could it be a positive attitude? Could it be a smile? Could it be a little more patience?  For me right now it is all 3 of these things.  Mom says her statement piece is Pinky but Pinky symbolizes so much more.  Pinky symbolizes a part of her acceptance of this piece of her life.  Some days this acceptance is easier than others. 

So this Spring I will also be wearing my own statement piece everyday- a more positive attitude about life and most importantly about Mom’s MS.  One of patience, of smiles, of laughter and most importantly love.

Do you already have a Spring statement piece? Have you ever thought of using a statement piece as a means to make a personal change in yourself? Do you think I maybe do need a new necklace/statement piece just because it is Spring?

“Why Couldn’t She Have Broken Her Nose?”

Friday.  Sigh. I love a Friday.  I called Mom at lunch today and she told me that she was in so much pain because of her hip last night that she hardly slept.  Consequently I am pretty sure Dad hardly slept.  This morning Dad was either going to take her to the emergency room or her primary doctor.  They opted for the primary doctor sans appointment. They walked in even though they were booked and sat.  They eventually got to see the doctor.  The doctor thinks Mom may have have a stress fracture in her hip and scheduled her for an MRI today at 4. 

What? Seriously? Are you kidding? No, it’s clear you are not. 

I called Sister K and told her this right after.  Her response.  In this overwhelmed voice that implied what else could go wrong she proclaimed WHAAAT?? And then we both started laughing.  Not a mean spirited laughter.  We hate more than anything the idea of Mom in pain.  This was an overwhelmed at life right now laughter.  A laughter I am sure everyone experiences once in awhile. We talked. We thought out loud. About our life right now.  About what else could go wrong?  We were just so overwhelmed and in shock all we could do was laugh.  Then I responded and said, “I mean why couldn’t she have broken her nose?”     

So that’s where we are.  Mom is scheduled for an MRI today at 4.  They have a doctor’s appointment on Monday morning to find out the results.  At least the doctor was able to give Mom some strong pain medicine.  We were planning to surprise Mom Sunday for Mother’s Day by driving home for the day.  It’s clear we may be needed around the house to help out a little more.  It’d be nice to be there to keep Mom in good spirits and to help Dad.  With the way our schedules have played out I am planning to go tomorrow night and come back Sunday.  Sister K will drive down Sunday and come back Monday since she is done with grad school for a few weeks until June. 

Even as I sit here writing, I sit here dumbfounded.  I’m worried, I am concerned and a bit overwhelmed.  But there is great comfort in having Sister K to get through this with a good perspective.  A perspective that is not filled with bitterness and anger.  But filled with a dash of laughter.

Sometimes you have to laugh at life.  At these cards we have been dealt.  Our cards are becoming increasingly more complex.  They are growing in size.  Just as we think we’ve gotten a handle on them we get dealt a new hand. It’s becoming quite the cycle.  Life is forcing us to find a way to deal with it.  And we are dealing with it in our own way.

For Sister K and I we are silently wishing Mom had a broken nose. And then we are laughing because who wishes a broken nose upon their Mom..on Mother’s Day weekend no less.    

Hoping you can find some laughter too in this crazy thing we call life.  Wishing you a happy weekend and a Happy Mother’s Day.  

Shuffleboarding Through Life

Yesterday Husband had his last final for the semester.  This means he is now officially through with his 1st year of Grad school.  To celebrate this, his grad school friends planned a shuffleboard tournament.  Have you ever played shuffleboard?  I had not.  So as people explained the rules to me and what to do I stood there with a smile.  I nodded.  I pretended to understand.  Really having no idea what they were talking about.  Lines. Points. 3 points. 4 points. No points. Okay I thought. Let’s just dive in and see what happens.

As it turns out, I am really good at shuffleboard. The first few times I had to shoot the puck were a disaster but then I got into a rhythm.  I still messed up a few times but got better and better with my “dismount.” I think this is kind of true of life. My life especially right now. 

3 years ago I was told Mom has MS.  There was no smile but I nodded.  I didn’t understand the rules. I didn’t understand what that meant. But I was forced to dive in. To see what happens.  In a way I am shuffling through this experience.  Shuffling through life with Mom.  The first few experiences were a disaster in their own ways.  I didn’t communicate correctly. I stressed Mom out. But now I am feeling more like I have a rhythm.  I still shoot my puck off the table sometimes.  And that’s okay.  But my coordination is improving. I am getting a better eye for dealing with certain topics. Certain issues.  Out maneuvering my opponent.  In this case the opponent is MS.  Once in awhile I do something amazing and score a very high score with myself.  With Mom.  Much like I did last night. 

(I scored 11 points on 3 throws and won the game. I also won MVP. WIth this win came a lovely trophy that says MVP and is literally a toilet bowl. Husband is very excited about this addition to our apartment…)

I must remember there will always be new games in life.  New rules. I won’t always understand them but sometimes there isn’t time to understand.  You just have to dive in. Play the game. Try to do the best you can and sometimes you may surprise yourself and be better than you think. 

Do you ever feel like you are shuffleboarding through life?  Have you ever played shuffleboard?  Where do you think the best location is for a toilet bowl MVP trophy? 

 

A Smile on a Dreary Day

In an effort to try and keep my mind more positive I am taking a step back to evaluate what brings negative thoughts into my life.  This is and will continue to be an interesting process.  Sort of surprising actually.  I believe dealing with Mom’s MS has shifted this into not just an idea but a necessity for me.  I have a lot of overwhelming thoughts I am dealing with internally right now.  Sister K and I share these thoughts together.  But these thoughts, they are not uplifting.  They are anything but uplifting.  It’s a battle of the mind in some ways.  I am fighting to remain positive.  It is my natural instinct to fall back on negative thoughts than to stay in the positive.  It is easier but not healthier. 

It’s a dreary day outside.  It is interesting how it can impact your mood.  A dreary day gives you 2 choices: You embrace the dreary day and are thankful for the excuse to curl up with a good book or you embrace the dreary day and allow yourself to transform your mood to be dreary like the weather.  A year ago at this time I would have allowed my mood to mirror the weather.  It would’ve sent a bad mood into overdrive.  Now though, now I am challenging my mind.  I am trying to make a conscious effort not to go there.

So what do I think about to stay positive today?  I am thinking about my kindle. It was my birthday gift from Mom and Dad and I got it this past weekend when I was home.  I love it.  I am currently rereading Pride and Prejudice by Jane AustenWe watched the ending of the movie at home Saturday night because it was on tv so it was fresh in my mind when I went to look at the free books offered.  More than that though, it has become an escape.  A whimsical escape for my thoughts and my mind.  It requires a little extra focus to read it because of the English literature.  But once I am focused and reading I am absorbed.  The feeling of being absorbed continues when I am not reading.  I am not thinking about Mom’s MS in my spare thoughts but Elizabeth Bennett.  Her mother’s love for her daughters and crazy antics reminds me of a sillier version of Mom.  It makes me think of Mom as my Mom and not Mom with MS. 

So tonight I am going to head home from work and transport myself to the Bennet family’s home filled with sisters, love and laughter.  In a sense I will be wrapping myself up with the qualities I love most about my family.  And on this dreary day thinking of that makes me smile.

Today I Am Hopeful

Regardless of your political viewpoint, it was good to see the words MS on the cover of ABC News today.  I believe increasing awareness of MS is what is going to increase fundraising support which will in turn increase research which will in turn find a cure.  Every mention of MS in the media only helps build that awareness. 

Its been a tough week filled with tough discussions about Mom, trying to get a handle on what is facing us and trying to do everything we can.  I am trying to be more optimistic.  To hold on to hope because in the end that is all we have.  Deep down no matter how down I feel about what is going on around me with Mom there is always a spec of hope. 

Today I am hopeful.

Shoe Me Your Strength

When Mom got diagnosed with MS she had to get some special shoes to help with her walking.  As you can imagine they aren’t exactly a designer shoe.  To put it bluntly (which I don’t think I have ever done when talking about her shoes), they are glorified black velcro shoes.  They are also a necessity for Mom’s life.  They get the job done which is helping Mom stay balanced.  But no matter how fashion conscious a person is that is tough.  And Mom loved, still loves shoes.  Cute little sandals in the summers or boots in the winter or even going without shoes around the house.  These were now all things of the past.  Her shoes, these shoes are a necessity now. 

That being said, we try to focus on other fun accessories for Mom that will make her feel like a million bucks.  A trendy purse to have set out even though she has a walker or some beautiful jewelry.  I know people would say it’s not that big of a deal not wearing cute shoes but I doubt they’ve ever really thought about it.  Never really thought about a simple item of clothing that seems irrelevent having that big of an impact on your everyday life.  How would you feel if you were dressed head to toe in a beautiful formal gown and then had to put on a pair of black velcro sandals?  That was Mom on my wedding day.  A day that was as big for her in importance as it was for me.  Her gown was a little extra long and you never noticed her shoes.  She looked beautiful.  But she knew she was wearing those shoes.  She knew.   

You have to be a strong person to put on these shoes and ignore them, especially in a society so focused on appearance and fashion.  Putting on these shoes is not for the weak.  Mom may not be able to run a marathon but I bet she is stronger than any marathon runner out there.

Being Present

Today I am trying to be more present.  Live in the here and now.  Not allow my thoughts to drift to the future or to the past. 

As a declared planner this is hard for me. I like to plan the future and make plans for it.  I also like to think, and rethink a lot.  But in training myself to be present in my thoughts I can also be more present with thoughts about Mom.  I can refuse to let my mind wander off to ideas of where MS may take us, therefore making me scared.  I can refuse to let my mind wander to memories of my past with Mom before MS, therefore making me sad. I can wander in the present and might find it’s actually more fun than the past or future. 

 

Mother/Daughter Movie Time

I was home visiting one weekend and Dad was in the other room watching tv.  Mom and I were hanging out in my parents bedroom for some reason and I was flipping channels trying to find us a good chick flick to watch instead of whatever “boy movie” Dad was watching in the living room.  I found a show on ABC Family called Lucky Seven . We like these silly girly movies. They have been our thing for as long as I can remember.  Growing up in a family of girls, a chick flick usually wins out over an action film.  Plus Patrick Dempsy, aka Dr. McDreamy and Kimberly Williams from Father of the Bride, it’s the perfect combination for us! 

I turned on the movie and sat on the bench at the end of my parents bed with Mom. We were watching the movie, just sitting there.  No words spoken.  Happiness being felt.  Mom took my hand and said “Will you please just love me and be patient with me.”  I don’t remember what I responded but it doesn’t matter.  In that one sentence Mom summed up how she felt and continues to feel.  It was a sweet moment and made me wish I could freeze time so we could stay there forever.  Sitting on the bench, watching a movie, Mom not in pain or stressed, me not worrying or stressed.  I don’t remember what had exactly happened earlier in the day but I am guessing I let my lack of patience with Mom get the best of me.  I have a tendency to do that…   

I want to remember that moment because it was a gift.  It was simple.  There weren’t a lot of words and there was not even a lot of activity.  Many people would say there wasn’t even a good movie on tv, but I would have to disagree since we love girly ABC Family movies.  The point is that as MS has come into our lives our time together has changed and the activities we share are different.  We don’t run around as much as we used to but I find I cherish our simple moments more.  They cause me to pause more and really focus on them.  Today I don’t remember the shopping trip we may have had that weekend, even where we went for dinner but I do remember this evening spent holding Mom’s hand while we shared a movie.  I need to focus more on our sweet moments and less on big picture stress. 

In moments like this MS isn’t the focus but the love of a mother and daughter is and I have an ABC Family movie to thank for that.

Beating The Weasel

While writing my post yesterday, I realized I had finally discovered the ideal image to depict my thoughts on MS.  Everything can be summed up by the theme park game where little weasels pop up and using a giant paddle players try and hit them back under ground as fast as possible.  I don’t know the actual name of this game and I am not even sure it has one.  I googled “theme park hit the weasel game” but was unsuccessful in my search. 

Regardless, I started to think of all the different feelings/symptoms each of those weasels symbolize in MS for both my mom and me.  It pulls together a range of symptoms which lead to problems which I try to solve for my mom.  They are different for both of us but we each have our own set of weasels.  To help me not stress and instead feel empowered that I can beat the feelings, I’m going to visualize holding my paddle and hitting each negative thought or emotion down even though I know it may pop right back up.  I am going to commit to continue swinging the paddle to hit them back down below.  Becuase that is what I have to do.  I have to keep trying, keep swinging the paddle and hope that one day the weasel I keep hitting stays down for good.